‘Central sensitivity syndrome’ is a relatively new umbrella term used to describe a group of related illnesses including fibromyalgia (FMS), chronic fatigue syndrome (CFS), temporomandibular joint disorder (TMJ), irritable bowel syndrome (IBS) and several other conditions. Informal observations have suggested that autistic people might be more vulnerable to developing these conditions.
The first part of the CENSSAS study aims to explore whether there could be an association between these conditions and, if so, what common complaints or overlapping symptoms there might be. To do this, we need to explore the symptoms of people with ASC and with CSS, but also look at the extent to which symptoms of CSS, autistic traits or other related symptoms occur in the broader population. Therefore, we are seeking participation from anyone aged 18+.
The survey should take around 30-45 minutes to complete, and you should be able to complete it in more than one sitting if you wish, provided you use the same computer/browser.
After the initial survey, we will speak to people with autism, a central sensitivity syndrome, or both conditions, to find out more about their experiences of chronic illness, including daily living, health care and the diagnostic journey. You will be able to provide your email address at the end of the survey if you are interested in participating in this part of the study.